214.556 Kentucky Cancer Registry -- Cancer patient data management system. - Kentucky Statutes

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Page 1 of 2 214.556 Kentucky Cancer Registry -- Cancer patient data management system. (1) There is hereby established within the Kentucky cancer program the Kentucky Cancer Registry and the cancer patient data management system for the purpose of
providing accurate and up-to-date information about cancer in Kentucky and
facilitating the evaluation and improvement of cancer prevention, screening,
diagnosis, therapy, rehabilitation, and community care activities for citizens of the
Commonwealth. The cancer patient data management system shall be administered
by the Lucille Parker Markey Cancer Center. (2) Each licensed health facility which provides diagnostic services, or diagnostic services and treatment, or treatment to cancer patients shall report to the Kentucky
Cancer Registry, through the cancer patient data management system and in a
format prescribed by the Kentucky Cancer Registry, each case of cancer seen at that
health facility. Failure to comply may be cause for assessment of an administrative
fine for the health facility, the same as for violation of KRS 216B.250. (3) Each health facility shall grant to the cancer registry access to all records which would identify cases of cancer or would establish characteristics of the cancer,
treatment of the cancer, or status of any identified cancer patient. Hospitals actively
participating and enrolled in the cancer patient data management system of the
Kentucky Cancer Program as of July 13, 1990, shall be considered to be in
compliance with this section. The Lucille Parker Markey Cancer Center shall
provide staff assistance in compiling and reporting required information to hospitals
which treat a low volume of patients. (4) No liability of any kind or character for damages or other relief shall arise or be enforced against any licensed health facility by reason of having provided the
information or material to the Kentucky Cancer Registry pursuant to the
requirements of this section. (5) The identity of any person whose condition or treatment has been reported to the Kentucky Cancer Registry shall be confidential, except that:
(a) The Kentucky Cancer Registry may exchange patient-specific data with any other cancer control agency or clinical facility for the purpose of obtaining
information necessary to complete a case record, but the agency or clinical
facility shall not further disclose such personal data; and (b) The Kentucky Cancer Registry may contact individual patients if necessary to obtain follow-up information which is not available from the health facility. (6) All information, interviews, reports, statements, memoranda, or other data furnished by reason of this section and any findings or conclusions resulting from those
studies shall be privileged. (7) The Kentucky Cancer Registry shall make periodic reports of its data and any related findings and recommendations to the Legislative Research Commission, the
Interim Joint Committees on Appropriations and Revenue and on Health and
Welfare, the Governor, the Cabinet for Health and Family Services, the reporting
health facility, and other appropriate governmental and nongovernmental cancer
control agencies whose intent it is to reduce the incidence, morbidity, and mortality Page 2 of 2 of cancer. The Kentucky Cancer Registry may conduct analyses and studies as are
indicated to advance cancer control in the Commonwealth. Effective: June 20, 2005
History: Amended 2005 Ky. Acts ch. 99, sec. 463, effective June 20, 2005. -- Amended 1998 Ky. Acts ch. 426, sec. 410, effective July 15, 1998. -- Amended 1994 Ky. Acts
ch. 184, sec. 3, effective July 15, 1994. -- Created 1990 Ky. Acts ch. 318, sec. 5,
effective July 1, 1990.